Blogger Linda Randall pays respect to lisa Camilleri funeral for baby blake darte funeral home st catharines Thursday, April 9, from 2-4 p.m

Blogger Linda Randall  pays respect to lisa Camilleri funeral for baby blake darte funeral home st catharines Thursday, April 9, from 2-4 p.m

Blogger Linda Randall pays respect to lisa Camilleri funeral for baby blake darte funeral home st catharines Thursday, April 9, from 2-4 p.m

Blogger Linda Randall pays respect to lisa Camilleri funeral for baby blake darte funeral home st catharines Thursday, April 9, from 2-4 p.m

strange pictures show up on camera at Blake Majkut's viewing

strange pictures show up on camera at Blake Majkut’s viewing

the idea girl says

*the cell phone camera kept doing strange things as soon as we walked into the George Darte Funeral home – we assume its haunted by many ghosts…

You can feel the dark cloud of grief as you walk through the entrance doors, it hit us like a brick wall…

harry and linda at george darte funeral home feel family grief really strong baby blake majkut funeral

harry and linda at george darte funeral home feel family grief really strong baby blake majkut funeral

harry and linda at george darte funeral home feel family grief really strong baby blake majkut funeral

BestWestern-CairnCroft dancing with lisa camerilli - linda randall harold chisholm years ago....

BestWestern-CairnCroft dancing with lisa camerilli – linda randall harold chisholm years ago….

BestWestern-CairnCroft dancing with lisa camerilli – linda randall harold chisholm years ago….

Best-Western-Cairn-Croft-Hotel-Niagara-Falls-lounge-dancing memories lisa camerilli linda randall harold chisholm years ago...

Best-Western-Cairn-Croft-Hotel-Niagara-Falls-lounge-dancing memories lisa camerilli linda randall harold chisholm years ago…

the idea girl says

I can’t believe I found a pic of the OLD dance floor – remember those days?

found it on canadian sky UK! wow! our european tourists have pics but we dont….

we didn’t have camera’s on our cell phones back then…

the idea girl says

my husband harold chisholm, doesn’t know the family too well, but he does remember Lisa Camilleri dancing with me years ago at the Cairn Croft on a Friday Girls Night out… (the dance club is gone now.. sigh… I miss it!)

Blake Majkut donates to Ronald McDonald House

Blake Majkut donates to Ronald McDonald House

Blake Majkut donates to Ronald McDonald House

the idea girl says

As we walked towards the funeral room, we saw this in memory of Blake – Ronald McDonald House – we saw people lining up to give donations (one lady gave $10,000? not sure if it was for blake’s fund raiser)….

We smiled.  We’d eaten breakfast that day with our coupons at McDonalds…

Winston comforts grieving children parents at George Darte Funeral Home St Catharines ON

Winston comforts grieving children parents at George Darte Funeral Home St Catharines ON

Winston comforts grieving children parents at George Darte Funeral Home St Catharines ON

the idea girl says

Harry was all excited to see a dog – Winston – I was a bit shocked, but when I saw the little boy at Blake’s funeral get down on the floor and play with the dog, I realized how important it was to have a “comfort dog” there… Great Idea! Kudo’s to George Darte Funeral home to provide this service… I think other funeral homes should do the same (especially for pet lovers, dogs are soooo comforting and when people are upset their blood pressure goes really high.. a dog licking your hand our the act of petting a dog, will (statistically proven) reduce your blood pressure!

is this ecto mist or bad camera shot at george darte funeral for blake majkut

is this ecto mist or bad camera shot at george darte funeral for blake majkut

is this ecto mist or bad camera shot at george darte funeral for blake majkut

the idea girl says

it happens again, my cell phone goes all weird while I’m trying to take pictures of the interior hallway towards the funeral room where Blake Majkut’s viewing is…

gorgeous fireplace with statues and lovely spring smelling flowers greet you at darte funeral home st catharines

gorgeous fireplace with statues and lovely spring smelling flowers greet you at darte funeral home st catharines

gorgeous fireplace with statues and lovely spring smelling flowers greet you at darte funeral home st catharines

the idea girl says

interesting.. ANGEL statues – you mentally think “comfort me” and then the spring smelling flowers – this sends a message of “cheer up” to the brain in the entrance of George Darte Funeral home.  So your brain gets two messages just as you walk in… Nice decor plan there!

Sad to say goodbye to baby blake majkut Trisomy 13 baby lived 13 months till april 3 2015

Sad to say goodbye to baby blake majkut Trisomy 13 baby lived 13 months till april 3 2015

Sad to say goodbye to baby blake majkut Trisomy 13 baby lived 13 months till april 3 2015

the idea girl says

goodbye baby blake, we will miss you but we know that other Trisomy 13 babies can have some hope to live past one month with their families too – because of you, the doctors know how to extend lives and hopefully they will continue to do so for many patients after you!

you made a big difference here on Earth, educating the doctors, nurses on how to extend your life.  Our many prayers from the community kept this little peanut alive for as long as he could take it.  The pain in his body was immense.  Now he’s at peace, happy, with no pain in heaven.

It will be interesting to see how Lisa uses the knowledge as a mother with this rare disease. I hope she writes a book about how she took care of blake, what type of support she had, and what she learned from the experience (other than the grief and pain in losing a loved one, what did you learn about how your friends, family and local community reached out and helped you in your time of need?)

I think setting up an only community group would be a good thing for you to do if your up to it.  I remember you being “frustrated” Lisa – trying to find out information about the medication Blake took, You could blog that, it’s effects and whether it helped him (relieve symptoms) or made things worse, so that other PARENTS with a child that has Trisomy 13, can educate themselves and perhaps offer suggestions to physicians around the world….. just a thought.. 🙂 Your family is in our prayers every day – we pray for the angels to comfort you and help you to continue making a difference not only in your personal life, but in those 10,000 people that followed your son baby blake majkut’s quest here on earth….

we will forever remember his sweet smiles…

hugs linda & harold.

remembering blake Majkut a smiling fighter - don fraser QMI Agency Sun 5 Apr 2015 died fri Lisa Camilleri mother, friend linda randall blogs idea girl canada

remembering blake Majkut a smiling fighter – don fraser QMI Agency Sun 5 Apr 2015 died fri Lisa Camilleri mother, friend linda randall blogs idea girl canada

remembering blake Majkut a smiling fighter – don fraser QMI Agency Sun 5 Apr 2015 died fri Lisa Camilleri mother, friend linda randall blogs idea girl canada

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Saying Goodbye to a Little Ray of Sunshine after 13 months of life – Blake Majkut – Trisomy 13 child , Lisa Camilleri’s son

remembering blake Majkut a smiling fighter - don fraser QMI Agency Sun 5 Apr 2015 died fri Lisa Camilleri mother, friend linda randall blogs idea girl canada

remembering blake Majkut a smiling fighter – don fraser QMI Agency Sun 5 Apr 2015 died fri Lisa Camilleri mother, friend linda randall blogs idea girl canada

remembering blake Majkut a smiling fighter – don fraser QMI Agency Sun 5 Apr 2015 died fri Lisa Camilleri mother, friend linda randall blogs idea girl canada

quote

GEORGE DARTE FUNERAL HOME, 585 Carlton St., on Thursday, April 9, from 2-4 p.m. and 7-9 p.m –

Blake will be forever loved and missed by his parents Kevin and Lisa and by his sisters Kelsea and Kiya. Blake was adored by his Grandma Barb and by his grandparents Lynda and Ted. Blake will be remembered by many family and friends.

source:

http://www.dartefuneralhome.com/tribute/details/5151/Blake_Ted_John_Majkut/obituary.html

the idea girl says

It was with great sadness we said goodbye in st catharines ontario canada at the Darte Funeral Home

Lisa’s and her families little peanut  died on Friday morning April 3, 2015, Harry and I found out while checking my facebook wall messages – we had a good cry while reading about it and again when we went to the viewing we couldn’t keep the tears away as we looked at the poster collages of him with his family through the difficult months, stages of his life.

The doctor’s tried all sorts of different medications on him and hopefully since they document everything, other babies born with Trisomy 13 will live longer than one month (he was the first to live to a year!).

He was a little hero in our eyes because he managed to live a year (plus one month) instead of a month as other babies born with the same condition had.

We are thankful to all of you for your prayers and letting Lisa’s family enjoy Blake Majkut’s first Halloween, his first Christmas and  his first Good Friday – Easter with him.

Now Blake is resting in the arms of Jesus after fighting 13 months – a rare disease – as QUOTE – “a genetic abnormality known as Trisomy 13.”

source

http://www.stcatharinesstandard.ca/2015/04/04/remembering-blake-a-smiling-fighter

I will blog our story soon of our sad visit to Blake’s viewing….

Free Pancake Breakfast Every Sunday 9:15 – 9:45 am before Central Community Church Services at 10 am

Free Pancake Breakfast Every Sunday 9:15 – 9:45 am before Central Community Church Services at 10 am

central community church church st st catharines on - rock COMMUNITY KITCHEN LUNCH SAT 12 - 3 PM   Google Maps idea girl canada

central community church church st st catharines on – rock COMMUNITY KITCHEN LUNCH SAT 12 – 3 PM Google Maps idea girl canada

central community church church st st catharines on – rock COMMUNITY KITCHEN LUNCH SAT 12 – 3 PM, FREE Pancake BREAKFAST every SUNDAY 915 – 945 am  Google Maps idea girl canada

 

the idea girl says

another community kitchen breakfast that’s provided each Sunday at the Central Community Church on 203 Church St (Niagara St, Queenston St area) – yummy pancakes.  I think they might have coffee with that as well and possibly other foods, I went once to check it out but that was last year.  We will have to go again to find out full meal/menu’s here…

thanks to PAUL for letting us know about this food program.

 

Rankin Construction Falcons help served breakfast sunday at cental community church on Feb 16 2014

Rankin Construction Falcons help served breakfast sunday at cental community church on Feb 16 2014

Rankin Construction Falcons help served breakfast sunday at cental community church on Feb 16 2014

GOJHL  St Catharines Falcons  serve central community church free pancake breakfast in 2014 on church st in st catharines ont idea girl canada

GOJHL St Catharines Falcons serve central community church free pancake breakfast in 2014 on church st in st catharines ont idea girl canada

GOJHL St Catharines Falcons serve central community church free pancake breakfast in 2014 on church st in st catharines ont idea girl canada

source of Falcon photos

http://www.pointstreaksites.com/view/stcatharinesfalcons/photo-gallery